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A Registered Charity - No. 1103850

Hi, my name is Emily and I am the contact for new parents here at Down’s Syndrome Oxford. 

I live in Wallingford with my husband Ben and our two sons, Edward (Teddy) and William (Bill). I work 3 days a week as Senior Sales Manager for Bloomsbury Publishing as well as helping out with Ben’s building company so life is busy!

Bill was born on New Years Eve 2017 and had a post-natal diagnosis of Downs Syndrome. When we received his diagnosis it was a bit of a shock and there were lots of mixed emotions and tears in those first few weeks. We loved our beautiful little boy unconditionally but not knowing much about Down’s Syndrome we felt confused, unprepared, and scared for the future. It was a whirlwind of emotions and a very daunting time.

Fast forward 18 months and although there have been a few bumps in the road Bill is doing amazingly! He had a bit of a rocky first winter with a few extended hospital admissions for bronchiolitis and had a feeding tube for 8 months as he struggled to coordinate feeding and breathing. During these challenging times we’ve been overwhelmed with the support Bill and us as a family have received from both medical professionals and our friends at DSO.

Bill is now a cheeky little toddler and we could not imagine our lives without him! He is an absolute super star and charms everyone he meets. He has the most infectious smile and playful nature. He loves faces and will study you closely. He is very active, commando crawling at speed. He is tenacious, determined to pull himself up on everything and over things to get what he wants. He is our gorgeous little monster and we could not love him more!

Bill attends the same local nursery as Teddy and is loving it. He has formed a strong bond with his key person and is already starting to make special friendships. He is thriving and we are so proud of him.

Through DSO we have made lots of new friends and have a huge support network of parents who share our journey and offer advice along the way. We first went to stay and play when William was only a few months old and have loved returning week after week for a cup of tea and a chat!

I would love to be in touch with you and congratulate you on the birth of your baby! It would be lovely to chat over the phone or email. If you would like to meet up for a cuppa you are more than welcome to come to my home or I can come to you. Hope you can also come to the Stay and Play Sessions on a Wednesday morning.

Contact Emily